Healthcare in the Netherlands

How is healthcare for individuals with intellectual disabilities organized in the Netherlands? Let’s take a look.

Healthcare professionals

Healthcare professionals have extensive expertise, but a scientific foundation when it comes to the healthcare of people with intellectual disabilities is still in its infancy. HA-ID hopes to change this. By acquiring more knowledge on how to prevent health problems, make better diagnoses, and ensure proper treatment, we believe we will be able to provide even better care.

Tools for healthcare professionals

HA-ID has generated much information over the years. The effect of light therapy on depression has been studied and new exercise programs have been developed for clients. Progress has been made on swallowing disorders, the use of medication, and sleep problems. New tools and diagnostic processes have been developed for practitioners, including VB Fitscan, the ADESS (Anxiety, Depression and Mood Scale) and the use of the Actiwatch and Actigraph. Together, this has contributed to a greater awareness throughout the field and more tools for healthcare professionals to use have been offered.

How does research work?

The HA-ID study is being conducted among the care organizations’ – Abrona, Amarant, and Ipse de Bruggen – clients. Before a study can start, it is first reviewed and assessed by Erasmus MC’s Medical Ethics Review Committee. In addition, clear criteria are established. Clients must meet this set of criteria in order to be able to participate in the study. These criteria can include a specific age or the presence or absence of certain health issues. If clients are eligible to participate in a study, they (or their legal representative) will be approached. Furthermore, the healthcare professionals involved (Intellectual Disability Physicians, caregivers, paramedics, behavioral experts or specialists/scientists) will also be informed of the roles they will assume in the study.

Dual role

The HA-ID researchers are often professionals who provide care to people with intellectual disabilities. The advantage of having this dual role is that the knowledge gained from research can soon be redirected to the care organization. This fosters the development of academic-professional collaboration between staff members and an internal research structure.